12th January 2018 Update

Posted on: Fri, 01/12/2018 - 00:00 By: Chris Skillen

Jack's Week

What a week! We had Jack’s routine heart scans on Wednesday as the heart is a muscle after all so needs to be regularly checked but at Jacks age (4) it’s only necessary every 2 years until he gets to about 8 and then it’s likely he’ll need to take different heart medication at some point around 10.

Happy New Year!

Posted on: Sun, 12/31/2017 - 23:00 By: Chris Skillen

Well it’s been another busy year! We continue to try to make the most of every minute whilst carrying on as normal as possible too.

We are truly humbled by all the practical, emotional, fundraising support and strength you continue to give us. No words can thank you enough. We'll be updating you in the coming weeks regarding all that was raised last year, how it's being spent, things we have lined up for 2018 that you might want to get involved in but for now we want to wish you a very happy healthy new year to you and your families. Love to you all xx

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